Resources – National Organization for Tardive Dyskinesia

Clinical Trials

TD Education

How to Manage Swallowing Disorders (Brain and Life Magazine, Dec 2022/Jan 2023)

Reducing TD Risk while Taking First-Generation Antipsychotics

Webinar with TD Expert: Dr. Stewart Factor

Living-with-TD.com

This user-friendly resource may help you recognize symptoms of TD that should be shared with your healthcare practitioner. Visit: https://living-with-td.com

Tardive Dyskinesia Expert Panel

Thank you to The CURESZ Foundation for sharing their Tardive Dyskinesia Expert Panel, which includes a U.S. map to find a doctor, TD videos, and their newsletter featuring Dr. Craig Chepke and Henry A. Nasrallah, MD, Co-Founder, Vice-President and Scientific Director, The CURESZ Foundation.

Health Monitor Network

The “Guide to Living with Tardive Dyskinesia” by Health Monitor Network, Winter 2020. TD warrior Phyllis Hall Bower appears on the cover and shares her amazing story offering hope to all those with tardive dyskinesia. TD warriors, Cariena Birchard, our former board secretary now NOTD volunteer, Leslie Baumgartner, and our Founder, Kathleen Shea, share their insightful self-help tips for living with TD.

WebMD

WebMD has published an online collection of tips from people living with TD. Several of our NOTD friends have contributed to this piece. It is a slideshow with photos of the contributors with their quotes. Thanks to the editors of WebMD.com and writer Kara Mayer Robinson for raising awareness of TD! https://www.webmd.com/mental-health/tardive-dyskinesia-20/tardive-dyskinesia-quotes

WebMD Video

Tardive Dyskinesia – Facing the Repetitive Movements

Tardive Dyskinesia NAMI-TN Podcast

Dr. David Charles, Director of the Movement Disorders Clinic at Vanderbilt University Medical Center, Kathleen Shea, and Ruth Ann Rich get together during Tardive Dyskinesia Awareness Week 2021 to help viewers better understand tardive dyskinesia. Hosted by Gabe Howard from the Inside Mental Health podcast (psychcentral.com/blog/show). View here.

Dental Brochure

NOTD would like to be sure that your dentist understands the special needs of a patient with tardive dyskinesia. This brochure was written by four professors from the UT Health School of Dentistry who have published about TD. It provides a brief description of what the general dentist needs to know for treatment of patients with Tardive Dyskinesia. Print this out and share with your dentist at your next appointment! TD Pamphlet for Dental Professionals

Tardive Dyskinesia Health Diary

Sign up below to get a free pdf tardive dyskinesia health diary. This is a great way to keep track of your daily symptoms. Just print out as many as you need. Using a 3 hole paper punch and putting the diaries into a binder is what we suggest.

Impact-TD Assessment Tool

The Impact-TD scale shown below is a straightforward tool developed by movement disorder experts. It can be used by practitioners such as therapists, social workers, physician assistants or nurse practitioners to assess the severity of a patient’s TD. Less clinical than the AIMS assessment, this tool focuses less on the movements and more on how TD affects the four primary aspects of life: Psychological, Social, Physical, and Vocational/Educational/Recreational. Download it here: IMPACT-TD scale – downloadable pocket guide

Get a Free TD Medical Card

These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a plastic card indicating that you have TD and describing TD for your wallet, or a lanyard plus a card that allows you to wear the card around your neck, please email us at info@tdhelp.org with the subject line “TD Card/Lanyard” with your name and address, and it will be mailed to you, free of charge. (A picture of the two-sided wallet-sized card is below.)