TD Education
Webinar with TD Expert: Dr. Stewart Factor
HealthWell Foundation: Financial Assistance for TD
Living-with-TD.com
This user-friendly resource may help you recognize symptoms of TD that should be shared with your healthcare practitioner. Visit: https://living-with-td.com
Tardive Dyskinesia Expert Panel
Thank you to The CURESZ Foundation for sharing their Tardive Dyskinesia Expert Panel, which includes a U.S. map to find a doctor, TD videos, and their newsletter featuring Dr. Craig Chepke and Henry A. Nasrallah, MD, Co-Founder, Vice-President and Scientific Director, The CURESZ Foundation.
Health Monitor Network
The “Guide to Living with Tardive Dyskinesia” by Health Monitor Network, Winter 2020. TD warrior Phyllis Hall Bower appears on the cover and shares her amazing story offering hope to all those with tardive dyskinesia. TD warriors, Cariena Birchard, our former board secretary now NOTD volunteer, Leslie Baumgartner, and our Founder, Kathleen Shea, share their insightful self-help tips for living with TD.
WebMD
WebMD has published an online collection of tips from people living with TD. Several of our NOTD friends have contributed to this piece. It is a slideshow with photos of the contributors with their quotes. Thanks to the editors of WebMD.com and writer Kara Mayer Robinson for raising awareness of TD! https://www.webmd.com/mental-health/tardive-dyskinesia-20/tardive-dyskinesia-quotes
WebMD Video
Tardive Dyskinesia – Facing the Repetitive Movements
Tardive Dyskinesia NAMI-TN Podcast
Dr. David Charles, Director of the Movement Disorders Clinic at Vanderbilt University Medical Center, Kathleen Shea, and Ruth Ann Rich get together during Tardive Dyskinesia Awareness Week 2021 to help viewers better understand tardive dyskinesia. Hosted by Gabe Howard from the Inside Mental Health podcast (psychcentral.com/blog/show). View here.
Dental Brochure
NOTD would like to be sure that your dentist understands the special needs of a patient with tardive dyskinesia. This brochure was written by four professors from the UT Health School of Dentistry who have published about TD. It provides a brief description of what the general dentist needs to know for treatment of patients with Tardive Dyskinesia. Print this out and share with your dentist at your next appointment! TD Pamphlet for Dental Professionals
Tardive Dyskinesia Health Diary
Sign up below to get a free pdf tardive dyskinesia health diary. This is a great way to keep track of your daily symptoms. Just print out as many as you need. Using a 3 hole paper punch and putting the diaries into a binder is what we suggest.
Impact-TD Assessment Tool
The Impact-TD scale shown below is a straightforward tool developed by movement disorder experts. It can be used by practitioners such as therapists, social workers, physician assistants or nurse practitioners to assess the severity of a patient’s TD. Less clinical than the AIMS assessment, this tool focuses less on the movements and more on how TD affects the four primary aspects of life: Psychological, Social, Physical, and Vocational/Educational/Recreational. Download it here: IMPACT-TD scale – downloadable pocket guide
Get a Free TD Medical Card
These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a plastic card indicating that you have TD and describing TD for your wallet, or a lanyard plus a card that allows you to wear the card around your neck, please email us at info@tdhelp.org with the subject line “TD Card/Lanyard” with your name and address, and it will be mailed to you, free of charge. (A picture of the two-sided wallet-sized card is below.)
Printable Tardive Dyskinesia Health Card
Related Links
Akathisia Alliance for Education and Research
CURESZ (Comprehensive Understanding via Research and Education into SchiZophrenia) Foundation:
Ask the Doctor: This is a once-a-month opportunity to participate in a 90-minute Q&A with an expert CURESZ Medical Board Member about brain disorders. It is limited to six individuals or families per month.
Tardive Dyskinesia newsletters: Written by experts from the CURESZ Medical Board. Highly recommended reading.
Dystonia Medical Research Foundation
National Alliance for Mental Illness (NAMI)
International Parkinson and Movement Disorders Society
NIH National Institute of Neurological Disorders and Stroke
National Organization for Rare Disorders
The Mighty: Tardive Dyskinesia
Social Media Groups
Meta (Facebook): *
Healing From Tardive Dyskinesia
Generalized Dystonia Support Forum
Cervical Dystonia Support Forum
*The groups listed are not affiliated with NOTD; please discuss with your doctor before considering following the advice of anyone participating in these groups.