Welcome to TDHelp.org

Thank you for visiting TDHelp.org, the online home of the National Organization for Tardive Dyskinesia (NOTD). This website provides numerous resources we hope you will find helpful such as discussion of self-help techniques, pharmaceutical and alternative treatments, and sharing of patients’ personal stories. Remember, you’re not alone in this journey. We are by your side bringing hope and help to you and all those suffering with tardive movement disorders.  

About Tardive Dyskinesia

“Tardive” meaning late and “dyskinesia” meaning involuntary movement, is the result of treatment with dopamine receptor-blocking agents (DRBAs). Classic tardive dyskinesia (TD) involves involuntary, repetitive movements of the face, limbs, torso and/or other body parts. The term “tardive dyskinesia” refers to movement disorders resulting from use of these medications for longer than a few months according to The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5). The most common group of medications that can cause tardive syndromes (an umbrella term encompassing a number of abnormal, involuntary movement disorders including classic TD) are antipsychotics and anti-emetics (anti-nausea drugs), though many other drugs have caused TD and other tardive syndromes. In many cases these syndromes are permanent. TD and other tardive syndromes can range from mild to life-threatening. Some form of TD affects at least 500,000 people in the U.S. and does not discriminate with regard to age, race, or gender. [Read more]

NOTD News

Treatments Options for Tardive Dyskinesia: Prescription, OTC, and Surgical Options

Thursday, Nov. 12, 2020, 3PM EST

 

Dr. Stewart Factor

We invite you to learn about your options for managing TD. In this webinar, noted expert in movement disorders, Stewart Factor, DO, will discuss medication, over-the-counter remedies and surgical options to reduce the unintentional, uncontrollable movements of TD.

About Dr. Factor

Stewart Factor, DO is currently Professor of Neurology, Director of the Movement Disorders Program and Vance Lanier Chair of Neurology at Emory University School of Medicine. He is past Chair of the Movement Disorders Section of the American Academy of Neurology. He has edited four textbooks on movement disorders as well as authoring over 300 peer reviewed articles. 

Register now for our webinar!

#MonumentalMoments 

We are participating in the #MonumentalMoments campaign. This is an initiative to celebrate the ways that people with mental health conditions, including those living with TD, can process their emotions during these challenging times. Many of us are feeling anxiety, worry and helplessness. To be a part of this, it’s simple:

  • Post an image, video, or status update to social media that shows a moment that was meaningful in caring for your mental health.
  • Use the hashtag #MonumentalMoments and tag three friends to grow the community.

You can visit http://MonumentalMoments.com to get inspired to prioritize your mental health and wellbeing and view others’ posts.

TD Medical Cards with Lanyards

Plastic TD medical cards with lanyards are now available. These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a lanyard plus card, please email us at info@tdhelp.org with the subject line “TD Lanyard” and your name and address and they will be mailed to you, free of cost. 

 

NOTD does not engage in the practice of medicine. The organization is not a medical authority. In all cases, NOTD recommends that you contact a physician regarding any course of treatment for tardive syndromes.