Welcome to TDhelp.org
Thank you for visiting TDHelp.org, the online home of the National Organization for Tardive Dyskinesia (NOTD). This website provides numerous resources we hope you will find helpful such as discussion of self-help techniques, pharmaceutical and alternative treatments, information on our Zoom TD support groups, and patients’ personal stories. Remember, you’re not alone in this journey. We are by your side bringing hope and help to you and all those suffering with tardive movement disorders.
Life with Tardive Dyskinesia
Save the date for this one-of-a-kind vacation! Join us for a fun, relaxing time with others that understand the challenges of living with TD. Make lifetime friends while escaping the winter weather! Leaving from Tampa, Florida, on Royal Caribbean, interior rooms are $835 per person, double occupancy. For complete details, or to reserve your stateroom, visit: TD Caribbean Cruise
NOTD Exhibits at AAPA Annual Conference
From May 21-23, 2022, the National Organization for Tardive Dyskinesia exhibited at the American Academy of Physicians Associates Conference in Indianapolis. This meeting was attended by 2,900 Physician Assistants/Associates and PA students. Mental health was a predominant theme of the conference — the opening session featured Jane Pauley and gymnast Simone Biles who shared their inspiring stories of overcoming mental challenges and reducing the stigma associated with mental illness.
TD Awareness Week 2022
For the first time, all 50 states and the District of Columbia proclaimed the first week of May as TD Awareness Week. NOTD raised awareness and advocated for the TD community by traveling to Washington, D.C. Four individuals with TD and their caregivers joined us. In total, we met with 16 Congressional offices. Personal stories of life with TD and the dramatic impact it can have on quality of life were shared.
We also expressed our support for the proposed FDA Neuroscience Center of Excellence and the continued robust funding of the BRAIN (Brain Research through Advancing Innovative Neurotechnologies) Initiative. Both are important to the future of TD prevention and treatment.
TD Symptom Tracker App is Now Available
NOTD is proud to announce that our one-of-a-kind smartphone app to track TD Symptoms is now available in the Apple App Store (for iPhone, iPad) and the Google Play store (for Android). This app makes it easy to record your involuntary movements and chart the progress of any TD treatments. You can also keep track of sleep, stress and even caffeine intake so you can monitor the effect of TD triggers.
“Shake, Rattle and Rock: Helping Children Understand the Challenges of Having a Loved One with Tardive Dyskinesia.”
A huge thank you to our Creative Director, Ruth Ann Rich. She and her son were the driving force behind the creative story for the grant we recently received for this upcoming children’s book. We hope this book will help kids understand their loved one’s TD and especially that they are not alone, as many children have parents, grandparents and other loved ones with TD. We are planning for publication in late 2022.
Congratulations to Our Founder!
Kathleen A. Shea’s memoir “Catastrophic Withdrawal: An Insomniac’s Attempt to Withdraw from Seroquel and How It Dramatically Altered Her Life” is now available in Kindle and paperback versions. While she is best known for starting NOTD, tardive dyskinesia is only part of her story. Be ready to be shocked by her account of her cataclysmic attempt at Seroquel withdrawal and how it changed her life forever. To date, her book has been read by individuals from the U.S., Canada, the UK, Ireland, Italy, France, Malaysia and New Zealand. Please visit and like her author page.
“Treatment of Tardive Syndromes” webinar
We invite you to learn about your options for managing TD. The highly-accredited Dr. Stewart Factor, Director of the Movement Disorders Clinic at Emory University (with a passion for tardive syndromes research) discussed medication, over-the-counter remedies and surgical options to reduce the unintentional, uncontrollable movements of TD. View our webinar here!
TD Medical Cards
Plastic TD medical cards with lanyards are now available. These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a lanyard plus card, please email us at email@example.com with the subject line “TD Lanyard” and your name and address and they will be mailed to you, free of charge.
NOTD does not engage in the practice of medicine. The organization is not a medical authority. In all cases, NOTD recommends that you contact a physician regarding any course of treatment for tardive syndromes.