Welcome to TDhelp.org

Thank you for visiting TDhelp.org, the online home of the National Organization for Tardive Dyskinesia (NOTD). This website provides numerous resources we hope you will find helpful such as discussion of self-help techniques, pharmaceutical and alternative treatments, information on our Zoom TD support groups, and patients’ personal stories. Remember, you’re not alone in this journey. We are by your side bringing hope and help to you and all those suffering with tardive movement disorders.  

Life with Tardive Dyskinesia

NOTD News

FREE Kindle Version of Our Founder’s Story on Amazon – January 19-23, 2023

Kathleen A. Shea’s memoir “Catastrophic Withdrawal: An Insomniac’s Attempt to Withdraw from Seroquel and How It Dramatically Altered Her Life” is available in Kindle and paperback versions. While she is best known for starting NOTD, tardive dyskinesia is only part of her story. Be ready to be shocked by her account of her cataclysmic attempt at Seroquel withdrawal and how it changed her life forever. Her book has been read by individuals from the U.S., Canada, UK, Ireland, Italy, France, Malaysia, the Philippines, and New Zealand. Please visit and like her author page. 

NOTD’s 3rd Birthday!

October 30, 2022 was our birthday! Thank you for all your support as we advocate, educate and raise awareness of this debilitating, medication-induced movement disorder. If you’d like to see highlights of the past 3 years, visit: facebook.com/TDHelp

NOTD Exhibits at NEI Congress

To raise awareness of TD and NOTD’s mission, we exhibited at the Neuroscience Education Institute (NEI) Congress in Colorado Springs from Nov. 3-6. We had the opportunity to interact with a number of psychiatrists and movement disorder specialists very interested in helping those with TD.

NOTD Exhibits at AAPA Annual Conference

From May 21-23, 2022, the National Organization for Tardive Dyskinesia exhibited at the American Academy of Physicians Associates Conference in Indianapolis. This meeting was attended by 2,900 Physician Assistants/Associates and PA students. Mental health was a predominant theme of the conference — the opening session featured Jane Pauley and gymnast Simone Biles who shared their inspiring stories of overcoming mental challenges and reducing the stigma associated with mental illness. 

TD Awareness Week 2022 

For the first time, all 50 states and the District of Columbia proclaimed the first week of May as TD Awareness Week. NOTD raised awareness and advocated for the TD community by traveling to Washington, D.C. Four individuals with TD and their caregivers joined us. In total, we met with 16 Congressional offices. Personal stories of life with TD and the dramatic impact it can have on quality of life were shared.

We also expressed our support for the proposed FDA Neuroscience Center of Excellence and the continued robust funding of the BRAIN (Brain Research through Advancing Innovative Neurotechnologies) Initiative. Both are important to the future of TD prevention and treatment. 

TD Symptom Tracker App

NOTD is proud to announce that our one-of-a-kind smartphone app to track TD Symptoms is now available in the Apple App Store (for iPhone, iPad) and the Google Play store (for Android). This app makes it easy to record your involuntary movements and chart the progress of any TD treatments. You can also keep track of sleep, stress and even caffeine intake so you can monitor the effect of TD triggers. 

It’s HIPAA compliant and encrypted so you can feel confident that your data is secure. To download it now, visit the Apple App Store or Google Play Store

Shake, Rattle and Rock:  Helping Children Understand the Challenges of Having a Loved One with Tardive Dyskinesia.”

A huge thank you to our Creative Director, Ruth Ann Rich. She and her son were the driving force behind the creative story for the grant we recently received for this upcoming children’s book. We hope this book will help kids understand their loved one’s TD and especially that they are not alone, as many children have parents, grandparents and other loved ones with TD. We are planning for publication Spring 2023.

“Treatment of Tardive Syndromes” webinar

We invite you to learn about your options for managing TD. The highly-accredited Dr. Stewart Factor, Director of the Movement Disorders Clinic at Emory University (with a passion for tardive syndromes research) discussed medication, over-the-counter remedies and surgical options to reduce the unintentional, uncontrollable movements of TD. View our webinar here!

TD Medical Cards

These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a plastic card indicating that you have TD and describing TD for your wallet or a lanyard plus a card, please email us at info@tdhelp.org with the subject line “TD Card/Lanyard” and your name and address and it will be mailed to you, free of charge.

 

NOTD does not engage in the practice of medicine. The organization is not a medical authority. In all cases, NOTD recommends that you contact a physician regarding any course of treatment for tardive syndromes.

TD Symptom Tracker App Now Available!

TD symptom tracker app icon
  • Easily record involuntary movements
  • Chart the effect of TD treatments
  • Visualize symptom trends over time
  • Email/text results to your physician(s)
  • Record emotions such as anxiety, depression, or happiness
  • Track lifestyle factors such as sleep, exercise, and stress