Welcome to TDHelp.org
Thank you for visiting TDHelp.org, the online home of the National Organization for Tardive Dyskinesia (NOTD). This website provides numerous resources we hope you will find helpful such as discussion of self-help techniques, pharmaceutical and alternative treatments, and sharing of patients’ personal stories. Remember, you’re not alone in this journey. We are by your side bringing hope and help to you and all those suffering with tardive movement disorders.
About Tardive Dyskinesia
“Tardive” meaning late and “dyskinesia” meaning involuntary movement, is the result of treatment with dopamine receptor-blocking agents (DRBAs). Classic tardive dyskinesia (TD) involves involuntary, repetitive movements of the face, limbs, torso and/or other body parts. The term “tardive dyskinesia” refers to movement disorders resulting from use of these medications for longer than a few months according to The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5). The most common group of medications that can cause tardive syndromes (an umbrella term encompassing a number of abnormal, involuntary movement disorders including classic TD) are antipsychotics and anti-emetics (anti-nausea drugs), though many other drugs have caused TD and other tardive syndromes. In many cases these syndromes are permanent. TD and other tardive syndromes can range from mild to life-threatening. Some form of TD affects at least 500,000 people in the U.S. and does not discriminate with regard to age, race, or gender. [Read more]
Improving Access to TD Patient Care
Please take a few minutes to complete this short survey. The Movement Disorders Policy Coalition is a strong advocate for patients with movement disorders, including TD, and are advocating on the federal and state level for better access to patient care. They are doing too many amazing things to list here. Let them know your experience during COVID-19, so they can continue to work on our behalf. https://www.movementdisorderspolicy.org/survey
WebMD has published an online collection of tips from people living with TD. Several of our NOTD friends have contributed to this piece. It is a slideshow with photos of the contributors with their quotes. Thanks to the editors of WebMD.com and writer Kara Mayer Robinson for raising awareness of TD! https://www.webmd.com/mental-health/tardive-dyskinesia-20/tardive-dyskinesia-quotes
Health Monitor Network
We’re excited to announce that the long-awaited “Guide to Living with Tardive Dyskinesia” by Health Monitor Network has been published. TD warrior Phyllis Hall appears on the cover and is sharing her amazing story offering hope to all those with tardive dyskinesia. TD patients Leslie Baumgartner, Cariena Birchard, and our Founder, Kathleen Shea, share their insightful self-help tips for TD.
NOTD does not engage in the practice of medicine. The organization is not a medical authority. In all cases, NOTD recommends that you contact a physician regarding any course of treatment for tardive syndromes.