TD Symptom Tracker App Now Available!

TD symptom tracker app icon
  • Easily record involuntary movements
  • Chart the effect of TD treatments
  • Visualize symptom trends over time
  • Email/text results to your physician(s)
  • Record emotions such as anxiety, depression, or happiness
  • Track lifestyle factors such as sleep, exercise, and stress

Welcome to TDHelp.org

Thank you for visiting TDHelp.org, the online home of the National Organization for Tardive Dyskinesia (NOTD). This website provides numerous resources we hope you will find helpful such as discussion of self-help techniques, pharmaceutical and alternative treatments, and sharing of patients’ personal stories. Remember, you’re not alone in this journey. We are by your side bringing hope and help to you and all those suffering with tardive movement disorders.  

About Tardive Dyskinesia

NOTD News

TD Awareness Week 2022 

For the first time, all 50 states and the District of Columbia proclaimed the first week of May as TD Awareness Week. NOTD raised awareness and advocated for the TD community by traveling to Washington, D.C. Four individuals with TD and their caregivers joined us. In total, we met with 16 Congressional offices. Personal stories of life with TD and the dramatic impact it can have on quality of life were shared.

We also expressed our support for the proposed FDA Neuroscience Center of Excellence and the continued robust funding of the BRAIN (Brain Research through Advancing Innovative Neurotechnologies) Initiative. Both are important to the future of TD prevention and treatment. 

TD Symptom Tracker App is Now Available

NOTD is proud to announce that our one-of-a-kind smartphone app to track TD Symptoms is now available in the Apple App Store (for iPhone, iPad) and the Google Play store (for Android). This app makes it easy to record your involuntary movements and chart the progress of any TD treatments. You can also keep track of sleep, stress and even caffeine intake so you can monitor the effect of TD triggers. 

It’s HIPAA compliant and encrypted so you can feel confident that your data is secure. To download it now, visit the Apple App Store or Google Play Store

Shake, Rattle and Rock:  Helping Children Understand the Challenges of Having a Loved One with Tardive Dyskinesia.”

A huge thank you to our Creative Director, Ruth Ann Rich. She and her son were the driving force behind the creative story for the grant we recently received for this upcoming children’s book. We hope this book will help kids understand their loved one’s TD and especially that they are not alone, as many children have parents, grandparents and other loved ones with TD. We are planning for publication in late 2022.

Clinical Neurological Society of America

In January, we attended the 48th Annual Meeting of the Clinical Neurological Society of America in Clearwater, Florida, not too far from our headquarters. We met some very wonderful neurologists that were excited to learn about our nonprofit charity for TD! This was our first in-person conference, as we became a 501(c)(3) nonprofit a few months before COVID-19 began. We will definitely be attending this conference in Captiva, Florida next year!

Congratulations to Our Founder!

Kathleen A. Shea’s memoir “Catastrophic Withdrawal: An Insomniac’s Attempt to Withdraw from Seroquel and How It Dramatically Altered Her Life” is now available in Kindle and paperback versions. While she is best known for starting NOTD, tardive dyskinesia is only part of her story. Be ready to be shocked by her account of her cataclysmic attempt at Seroquel withdrawal and how it changed her life forever. To date, her book has been read by individuals from the U.S., Canada, the UK, Ireland, Italy, France, Malaysia and New Zealand. Please visit and like her author page. 

“Treatment of Tardive Syndromes” webinar

We invite you to learn about your options for managing TD. The highly-accredited Dr. Stewart Factor, Director of the Movement Disorders Clinic at Emory University (with a passion for tardive syndromes research) discussed medication, over-the-counter remedies and surgical options to reduce the unintentional, uncontrollable movements of TD. View our webinar here!

#Monumental Moments 

We are participating in the #MonumentalMoments campaign. This is an initiative to celebrate the ways that people with mental health conditions, including those living with TD, can process their emotions during these challenging times. Many of us are feeling anxiety, worry and helplessness. To be a part of this, it’s simple:

Post an image, video, or status update to social media that shows a moment that was meaningful in caring for your mental health.

Use the hashtag #MonumentalMoments

Visit https://MonumentalMoments.com to get inspired to prioritize your mental health and wellbeing and view others’ posts.

TD Medical Cards

Plastic TD medical cards with lanyards are now available. These are helpful when traveling or anytime you are in a situation where your movements may be questioned. If you would like a lanyard plus card, please email us at info@tdhelp.org with the subject line “TD Lanyard” and your name and address and they will be mailed to you, free of cos

 

NOTD does not engage in the practice of medicine. The organization is not a medical authority. In all cases, NOTD recommends that you contact a physician regarding any course of treatment for tardive syndromes.